‘Incompatible With Life’? Some Say Not Anymore.

Trisomy 18 is normally fatal. Now some parents are choosing medical interventions to extend their children's lives.
The New York Times Magazine
August 3, 2025

Trisomy 18 is usually fatal shortly after birth. But some parents are getting more time with their children — with ​m​edical interventions and a Herculean daily effort. For this article, over more than a decade, the reporter​, Sheri Fink​, visited the family homes of children with the condition, sat with their parents in the NICU, observed surgeries, traveled to annual gatherings and, in some cases, attended funerals.

FEATURE

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Stephanie Sinclair for The New York Times

Noah Is Still Here

Trisomy 18 is normally fatal within weeks of birth. But some parents are getting more time — with surgeries, luck and an incredible amount of effort.

By Sheri Fink and Stephanie Sinclair

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Photograph by Victor J. Blue for The New York Times.

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